We have talked about the importance of inclusive research and ensuring the design of studies and trials are shaped by all voices recently. It is also important to consider the dissemination of results and ensuring we reach as many different groups as possible.
Currently, for 39% of OptiBreech participants, English is not their first language. We have a significant number of participants reporting Arabic, Polish, Portuguese, Romanian, Somali, Spanish, Tamil, and Urdu as their first language, with 13% of our participants indicating they need a translator. Additionally, 10% of OptiBreech participants are aged 25 and under.
We therefore would like to reach out to members of our involvement group and previous participants, to form an OptiBreech Results Group. We want to collaborate on developing a strategy to reach as many under-represented communities as we can who may not access our news and events through website updates or traditional media.
This may include making short, self-shot videos helping to communicate the results of our research in your own words and language, especially those results that YOU feel your community will find important. We welcome your ideas on how best to identify the most appropriate outlets to reach as many demographics as we can. You will be reimbursed for any activities with a Love2Shop voucher, in line with the NIHR’s recommended payment rates (approximately £25/hour).
We believe it is important to share data and evidence so that members of the public are aware of their options. We want everyone to have the information to be able to advocate for improved care for themselves individually or alongside their local Maternity Voices Partnership organisation.
Siân Davies, Participant & Public Involvement and Engagement (PPIE) lead.
To express an interest in helping us to disseminate the results of our research with your local community, please complete this form:
OptiBreech 